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Pediatric Psycho-Oncology Professionals
Information for Children and Young Adults

Camps

Hair and Wig Organizations

Wish Organizations

Travel Organizations

Links for Children & Adolescents

Links for Young Adults

Camps

Children’s Oncology Camping Association, International (COCA-Intl.)
http://www.cocai.org/
COCA-Intl.’s mission is to strengthen the international community of camps for children and their families. The forum consists of over 65 member camps within the United States, and nearly 100 camps total from around the world. COCA-Intl. meets annually at a conference hosted by a member camp.
Please visit COCA-Intl.’s website for a complete listing of camps available by location.

Hair and Wig Organizations

ChemoCare HeadWear
http://www.chemocareheadwear.com
Provides hats, turbans, sleep hats, swim caps and wigs for hair loss due to cancer treatment.

Girl on the Go
http://www.girlonthego.biz/
Provides private in-home wig consultations for girls and women going through cancer treatment.

Hair Club for Kids
www.hairclub.com/hc_for_kids.php
Provides free hair restoration for children battling hair loss as a result of illness.

Headcovers Unlimited
www.headcovers.com
Provides hats, turbans and wigs for hair loss and cancer patients.

Hip Hats with Hair
www.hatswithhair.com
Provides hats with human or synthetic hair attached for girls with hair loss that is due to chemotherapy.

Locks of Love (USA)
http://www.locksoflove.org/
The Locks of Love mission is “to return a sense of self, confidence and normalcy to children suffering from hair loss by utilizing donated ponytails to provide the highest quality hair prosthetics to financially disadvantaged children. The children receive hair prostheses free of charge or on a sliding scale, based on financial need.” Locks of Love is not part of any religious, political, or for-profit entity.

Stylish Noggins
www.stylishnoggins.com
A non-cancer-specific site that offers a unique selection of soft, cute hats for kids.

Wigs for Kids (USA)
http://www.wigsforkids.org/
Wigs for Kids is a non-profit organization providing hair-replacement solutions for children affected by hair loss due to medical conditions. The website includes information on hair donations, personal stories, and more.

Wiggalicious
www.wiggaliciouswigs.com
Provides free or low-cost wigs to women and girls who have lost hair due to chemotherapy.

Wish Organizations

Dreamflight (UK)
http://www.dreamflight.org/what-is-dreamflight-childrens-charity
Dreamflight is a registered charity that offers seriously ill children a trip to Orlando, Fl, USA for 10 days, without their parents. A team of doctors, nurses, physiotherapists, and volunteers supervise the children 24 hours a day.

Kids Wish Network (USA)
http://kidswishnetwork.org/
Kids Wish Network’s mission is to infuse hope, create happy memories, and improve the quality of life for children. It is a nationally recognized charitable organization. Programs include Wish Granting, Holiday of Hope Gift Banks, and Hero of the Month.

Make-A-Wish Foundation (International affiliations)
http://www.wish.org/
Mission: “[To] grant the wishes of children with life-threatening medical conditions to enrich the human experience with hope, strength and joy.” Make-A-Wish Foundation has 80 chapters across the USA and 22 international affiliates on 5 continents. The program grants a wish every 40 minutes.

Starlight Foundation (USA)
http://www.starlight.org/whoweare/
“Starlight Children’s Foundation has been dedicated to improving the quality of life for children with chronic and life-threatening illnesses and life-altering injuries by providing entertainment, education and family activities that help them cope with the pain, fear and isolation of prolonged illness.” Programs include family activities and outings, in-hospital entertainment technology, online communities and interactive websites, in-hospital playrooms, kid-friendly treatment rooms and special events, and educational programming.

Travel Organizations

Air Care Alliance (USA)
http://www.aircareall.org/
“The Air Care Alliance is a nationwide league of humanitarian flying organizations whose volunteer pilot members are dedicated to community service. This site will introduce you to us and to all the groups we list whose volunteers perform public benefit flying for health care, patient transport, disaster relief, educational experiences for youth, environmental support, and other missions of public service.”

Air Charity Network (formerly Angel Flight America)
http://www.aircharitynetwork.org
Air Charity Network is made up of independent charity organizations that arrange free air ambulance flights for patients and families in need.

American Airlines – Miles for Kids in Need
http://www.aa.com/kids
The Miles for Kids in Need program provides transportation for children and their families, as well as for organizations dedicated to improving the quality of life for children with needs. Flights are based on donated air travel miles.

Corporate Angel Network (CAN)
http://www.corpangelnetwork.org/
CAN arranges free air transportation to cancer patients traveling to treatment. US organization.

Mercy Medical Airlift
http://www.mercymedical.org
Mercy Medical Airlift’s (MMA) mission is to ensure that no patient in need is denied access to distant specialized medical evaluation, diagnosis or treatment for lack of a means of long-distance medical air transportation.

Links for Children & Adolescents

 

2bMe
www.2bme.org
This site for teens with cancer provides information on nonmedical topics, from skin and hair issues to fitness and friends.

Cancer Kids
www.cancerkids.org
This site tells the personal stories of children fighting many different types of cancer.

Captain Chemo
www.royalmarsden.org/captchemo
This interactive site provides children the opportunity to learn about cancer through fun, interactive computer games, based off of comics created by a young boy who had cancer

Chemo Angels
www.chemoangels.net
Children can apply to be “adopted” by a Chemo Angel who will provide support and encouragement throughout treatment with cards, notes, and small gifts.

Common Threads
www.commonthreads.org
Common Threads provides children in low-income families healthy, easy, and cost-effective tips for obtaining proper nutrition while teaching children the importance of healthy eating.

Group Loop
www.grouploop.org
This site provides online support as well as information and resources for teens living with cancer and their families.

KIDSAID
www.kidsaid.com
Specializes in email support groups where peers provide support while also being monitored by a trained therapist and psychiatrist.

Look Good…Feel Better
http://lookgoodfeelbetter.org/programs/programs-for-teens
Look Good… Feel Better is a hospital-based public service program that provides resources and programs from teens with cancer to deal with issues related to appearance, health, and social aspects of cancer treatment.

Next Step
http://www.nextstepnet.org
This organization for teens and young adults with cancer and life-threatening blood diseases offers retreats and workshops around the country.

Songs of Love
www.songsoflove.org
Songs of Love creates personalized, free songs for chronically ill children and young adults. You may download an application from the website.

Starbright World
www.starbrightworld.org
Starbright World is part of the Starlight Children’s Foundation. It is an online social network for teens with chronic and life-threatening illness and their siblings.

Teens Living with Cancer
www.teenslivingwithcancer.org
This site for teens with cancer has information on coping with hair loss, friends, family, school and more.

Links for Young Adults

CancerCare – Young Adult Program
www.cancercare.org/get_help/special_progs/young_adults.php
CancerCare offers specialized services for young adults, caregivers and those who have lost a loved one.

First Descents
www.firstdescents.org
First Descents provides whitewater kayaking and other outdoor adventure experiences to promote emotional, psychological and physical healing for young adults with cancer.

I’m Too Young for This! Cancer Foundation
http://i2y.com
I’m Too Young for This! is an all-inclusive young adult cancer community.

LIVESTRONG Young Adult Alliance
www.livestrong.org
The LIVESTRONG Young Adult Alliance is a coalition of organizations with the goal of improving survival rates and quality of life for young adults (ages 15 to 40) with cancer.

National Cancer Institute: Adolescents and Young Adults with Cancer
http://www.cancer.gov/cancertopics/aya
http://www.cancer.gov/ncicancerbulletin/072611
Continually updated portal on adolescents and young adults with cancer.

Next Step
www.nexstepnet.org
This organization is for teens and young adults with cancer and life-threatening blood diseases offers retreats and workshops around the United States.

Planet Cancer
http://myplanet.planetcancer.org
Planet Cancer is an online community for young adults with cancer.

Peer to Peer through the Sarcoma Alliance
http://www.sarcomaalliance.org/P2P.shtml
“Peer to Peer Network facilitates positive relationships between individuals affected by sarcoma so that they may find emotional support, encouragement and information.”

Prepare to Live
www.preparetolive.org
Prepare to Live is a source of help, hope, information and inspiration for young adult patients, survivors and caregivers coping with cancer worldwide.

Resource Guide for College Students Living with Chronic Health Issues
http://www.onlinecolleges.net/for-students/chronic-health-issues/
This guide touches on a number of pertinent points, including how to balance studies with disease management. It also lists a number of scholarships specifically for students dealing with illness - an important feature considering the financial aid pitfalls these students sometimes encounter.

Rise Above It (RAI)
www.raibenefit.org
RAI provides meaningful support to adolescents and young adults affected by cancer. RAI also provides financial assistance to patients ages 15 to 39 who are either undergoing or actively pursuing Phase I, II or III clinical trial treatment options.

Stupid Cancer
http://stupidcancer.org
Stupid Cancer is a non-profit organization that empowers young adults affected by cancer through innovative and award-winning programs and services. We are the nation's largest support community for this underserved population and serve as a bullhorn for the young adult cancer movement. Our charter is to ensure that no one goes unaware of the age-appropriate support resources they are entitled to so they can get busy living.

The Ashley Foundation

http://www.theashleyfoundation.org
The Ashley Founding provides assistance to teens affected by cancer through educational and supportive programs ,such as scholarship money for college and teen resources for hospitals.

The Children’s Cause
http://childrenscause.org/about
The Children’s Cause is a patient advocacy group that is dedicated to empowering and supporting young adults who had or still are living with cancer.

The Ulman Cancer Fund for Young Adults
www.ulmanfund.org
The Ulman Cancer Fund provides support programs, education and resources for young adults with cancer, as well as their families and friends.

Young Adult Cancer Canada (YACC)
To build a community of young adults diagnosed with cancer that provides information, support, skills and opportunity.
http://www.youngadultcancer.ca

Young Cancer Spouses
www.youngcancerspouses.org
The emotional and logistical issues a young spouse of a cancer patient faces are vastly different from spouses of older cancer patients that dominated oncology units and support groups. Young Cancer Spouses strives to bring together other spouses to share ideas, lend support, and validate their wide range of feelings and emotions so they can find comfort in an understanding community.

Disclaimer:
While we tried to include potentially useful resources, this website is not exhaustive. New and additional resources may be available. Please let us know if there is a resource you would like to be included.

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This Page Last Reviewed on January 29, 2014

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