Last Name: Lyon
Position Title: Associate Research Professor in Pediatrics; Principal Investigator, FAmily CEntered Advance Care Planning for Teens with Cancer
Job Responsibilities: Combination of Research and Patient Care
About Me/My interests: I have been an employee of Children’s National Medical Center since 1985. I also have an academic appointment as an Associate Research Professor in Pediatrics at George Washington University Medical Center. My clinical practice, teaching, and research interests have centered on the study of adolescence. I have conducted research on adherence to medication and treatment, secondary prevention of HIV/AIDS, the transition to adult health care, and family-centered advance care planning. I am currently Co-investigator on a collaborative research project funded by the Centers for Disease Control to study medication adherence and risk reduction in adolescents with HIV/AIDS, based on a pilot study I spearheaded at Children’s National. I completed a study of 50 adolescents with and without chronic illnesses about their attitudes towards end-of-life decision-making. I received an R34 from NIMH to study FAmily CEntered (FACE) Advance Care Planning with Teens with HIV which demonstrated increased congruence in treatment preferences for end of life care, decreased decisional conflict and no psychological harm. I am PI on a five-year, multi-site NINR funded study of Longitudinal Pediatric Palliative Care: Spiritual Struggle & Quality of Life. I am also PI on a pilot study funded by the American Cancer Society to adapt the FACE intervention for teens with cancer, which will be completed June 2012.
Training Opportunities: Yes
My Contact Information:
Address: Children’s National Medical Center, Center for Clinical & Community Research/Children’s Research Institute, 111 Michigan Avenue, NW, Room M7658, Washington, D.C 20010-2970
Topics of Interest for Collaboration: Pediatric palliative care, Adolescence, Shared decision-making, Family-centered advance care planning
Publications that may be of interest to others:
Garvie PA, He J, Wang J, D’Angelo LJ, Lyon M. (In press). An exploratory survey of end-of-life attitudes, beliefs and experiences of adolescents with HIV/AIDS and their families: J Pain and Symptom Management.
Lyon ME, Garvie PA, Kao E, Briggs L, He J, Malow R, D’Angelo L, McCarter L. (2011). Spirituality in HIV-infected adolescents and their families: FAmily CEntered (FACE) advance care planning and medication adherence. Journal of Adolescent Health, 48:633-636.
Lyon ME, Garvie PA, Briggs L, He J, D’Angelo LJ, McCarter R. (September, 2010 on line). An exploratory study of spirituality in Human Immunodeficiency Virus-infected adolescents and their families: FAmily CEntered (FACE) Advance Care Planning and medication adherence J Adolesc Health. DOI: 10.1016/j.jadohealth.2010.09.006
Lyon ME, Garvie PA, Briggs L, He J, Malow R, D’Angelo LJ, McCarter R. (2010) Is it safe? Talking to teens with HIV/AIDS about death and dying: A 3-month evaluation of family centered (FACE) advance care planning – anxiety, depression quality of life. HIV/AIDS - Research and Palliative Care, 2, 1-11.
Lyon ME, Garvie, PA, McCarter R, Briggs L, He J, D’Angelo L. (2009). Who Will Speak for Me? Improving End-of-Life Decision-Making for Adolescents with HIV and Their Families. PEDIATRICS, 123(2), e199-e206. PMID: 19171571