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Cell & Molecular Biology Section

Psychosocial Support and Translational Research Program
Educational Materials

The Pediatric Oncology Branch has produced a number of educational and therapeutic materials to help the children we serve learn about their condition and cope with the challenges they might face as a result of their illness. If you are interested in any of these resources, contact Lori Wiener, PhD at wienerl@mail.nih.gov.

This Is My WorldThis is My World

This workbook was designed as a psychotherapeutic tool for therapists to use when working with children and adolescents who have been diagnosed with a chronic or potentially life threatening illness. The pages within the workbook contain writing, drawing, crossword puzzles, and other fun activities that address items such as family, friends, favorite activities, coping, and loss. Children and their families enjoy going back years later to read what they had written about their journey of living with their illness.

 

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Brothers and Sisters Brothers and Sisters

This is a therapeutic workbook designed for the brothers and sisters of pediatric patients being treated for a serious illness.  Each page covers a different topic, and many pages contain quotes and sayings written by other brothers and sisters, interactive activities and tips for reaching out for help or books to read. Brothers and Sisters is available in English and Spanish. http://www.cc.nih.gov/ccc/patient_education/support.html

 

 

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Katie Finds Her CourageKatie Finds Her Courage

This book was written for families who have a child with neurofibromatosis type 1 (NF1). It tells the story of a child who is learning about having NF1 in words that children can understand and then finds the courage to share the information with her class. The book has activities for the child to engage in, a glossary of terms, and tips for teachers. Katie Finds Her Courage (PDF Document, 27 pages) image of a PDF icon

 

 

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Being a Stem Cell DonorBeing a Stem Cell Donor

This booklet was designed to help prepare sibling donors for the stem cell donation. It explains the transplant procedure, donation/collection process and allows them to express their concerns and questions through a daily diary. The booklet also contains a word search game, glossary of terms, and a listing of national resources.

 

 

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Quick Reference for Pediatric Oncology Clinicians: The 
         Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom ManagementQuick Reference for Pediatric Oncology Clinicians: The Psychiatric and Psychological Dimensions of Pediatric Cancer Symptom Management

This is the first pocket-size handbook covering basic principles of pediatric psychosocial oncology. Fifty-four contributing authors representing 29 institutions contributed chapters to this publication, which offers access to expert advice on the psychiatric, psychological, social and spiritual issues related to pediatric cancer treatment and survivorship. For more information on this book, contact the American Psychosocial Oncology Society at http://www.apos-society.org/professionals/tools-resources/handbook/pediatric/pediatrichandbook.aspx.

 

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Shop TalkShopTalk

ShopTalk is a therapeutic game designed for children living with cancer or another serious illness. It was created by Drs. Cindy Mamalian  (an artist and psychologist) and Lori Wiener to help therapists lead conversations with pediatric patients about difficult emotional issues related to the illness that has affected their lives (ages 7 to 16 years). ShopTalk players visit 10 different “shops” around the board, choosing one of 6 “gifts” from each store to place in their individual shopping bag when they choose to answer the question. The shops are named according to different themes: The Ball’s in Your Court sports store, for example, allows players to explore how they would respond to various social scenarios during treatment.
ShopTalk is available in three versions, one for  pediatric cancer patients, one for their siblings, and one for children whose parent have cancer. All questions in both versions of the game are written in Spanish as well as in English. Therapists who are interested in obtaining a copy of the game should contact Dr. Wiener directly at wienerl@mail.nih.gov.

 

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Coping with CancerCoping with Cancer

Starlight Foundation created this interactive web based program to help teens who are newly diagnosed with cancer address topics that they frequently think about. The POB was part of the healthcare advisory team that helped create and evaluate the content in this program. It can be assessed at http://chemo.starlight.org/.

 

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Teen TalkTeen Talk

This booklet addresses questions that HIV positive youth have about talking to others about their HIV status, sex, coping, and their future. The booklet can be accessed at: http://www.womenchildrenhiv.org/wchiv?page=wx-resource&root=typ&cat=03&subcat=prce&rid=752-41859

 

 

 

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Medicine and your Child. An image of a little boy refusing medicine given by a spoon.Medicine and Your Child

A Guide for Parents on Adherence and Administration. You can download the PDF here: Medicine & Your Child (PDF Document, 10 Pages) An image of a PDF icon

 

 

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This Page Last Reviewed on February 26, 2013

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